Thursday, March 28, 2013

two months.


clementine is two months already {what!?}. however, turner syndrome is proving to be a bit of a bonus because she's kind of like a newborn for a little longer.  she weighs nine pounds six ounces (seventh percentile for ts) and is 20.5 inches (one percentile for ts).  she's my little bit, but she's chunking out...cause that's how we barton's grow our babies. 

there have been several doctors appointments since her birth- most of which included a blood draw. they probably average one a week. i'm bored with it already. i think we've had to go to the doctor with her more in her two short months of life than we've ever been with the boys.  i get that it's necessary, but going to the doctor and going through the undressing and weighing and blood draws and examining and tests....well, it just get's old. for me and for her.  she continues to defy the odds. her body is amazing and even though we have some issues, it really isn't as bad as it could be. and for that i thank god. he knows i wouldn't be able to deal with more than what he's given us so far. 

she still has a really great disposition. i haven't really paid much attention to any kind of schedule she may be getting herself into other than starting at about five in the evenings she is constantly nursing, fussing, or taking a cat nap. and for heaven's sake do not put her down. and then, around nine o'clock, it's bedtime. she just passes out cold. 

below are a couple 'outtakes' from her little photoshoot. 
^^falling slowly....^^

*****

and here's a side by side comparison

that's all for tonight.  sorry for the trainwreck of forming an easy to read post. gah. even that didn't make sense.  my brain is all over the place these days. :) 


Thursday, March 7, 2013

a whole lotta love over here


 ^^she was annoyed with me for wanting a photo with her...i'm not sorry^^
^^this boy is ridiculously in love with this girl.^^
we said 'good-bye' to our obnoxious and annoying pet rabbit last week. being that i was the only one who took care of him and clementine has priority, we decided to take it back to the pet store. roman was only a little broken up over it. not near as bad as i thought he'd be. i think suggesting a photo to preserve the memory softened the heartache a bit.  plus i hear scooter already has a wife with gorgeous beady red eyes. lucky rabbit. 

happy thursday!

Monday, February 25, 2013

one month.

i just posted her birth story {here and here} and she's already a month old. where did the time go?! what an easy baby she is. the only thing i think she dislikes is getting undressed. other than that she is happy and healthy. oh how we love you clementine! 

Sunday, February 24, 2013

Clementine Eulalie ::a birth story::

part two.

{photo by haleigh steere}

i rolled over and peered at the clock. 4:53am. i scolded my body for not allowing me those seven extra minutes of sleep, but i was wide awake anticipating the day. my girls birth day. i laid in bed until the alarm went off and jeff got up. i took note that everything i did on this day would be the last time i'd ever do it while pregnant; forcing myself out of bed with a very round belly, the pain of my loosened joints and the weight of my girl, feeling her triple sowcow inside of me. there are some not so great things about pregnancy as well. for example, the slight growth of my nose from the extra fluid and the only comfortable thing to wear being leggings or my favorite black and white striped skirt. oh, and the feeling of running a marathon after going up a flight or stairs. i probably wont miss those things.  

i dressed for the day in said leggings, a tank top and a too-short-to-wear-at-37-weeks-pregnant sweater, applied my make-up and packed up the car. i looked around one last time and marveled at the fact that when we would return, there would be five of us. 

our drive to des moines felt surreal.  we were going to have a baby in a matter of hours but i wasn't in labor. that was a bizarre concept for me to grasp. jeff and i talked about what we were anticipating happening, praying that this sweet life wouldn't need nicu care or surgery or anything we were told could be a possibility.  

we arrived at the hospital, parked, and headed up to the labor and delivery floor to check in. once all the paper work was done we were taken to a pre/post- op room where i 'gowned up' and my nurse started poking me and strapping me to monitors and asking questions and giving me more papers to sign.  once i was all set we waited until the doctor came in and said it was time and he'd see us in a few minutes.
 {photo by haleigh steere}
 {photo by haleigh steere}
large amounts of antacids are disgusting. 
{photo: haleigh steere}

c-sections are no fun. i'm baffled at those to elect this procedure over natural. the recovery, for me at least, is brutal. and the tugging and pressure and pulling during the whole thing is terribly uncomfortable. but when i hear her cry...oh her precious first cries were amazing. i immediately started crying and then an emotion i wasn't expecting washed over me. i wasn't ready to see her. i was nervous about what she would look like, thinking she wouldn't look the way she should. i didn't mind them taking their time to assess her and i was a little jealous that jeff was at her side, only because i couldn't tell him how i was feeling.  i had to face this embarrassing fear alone. and then jeff brought her to me and i noticed her chubby little hand sticking out of the blanket and her beautiful swollen little face and i died.  girl looks like roman's twin. seriously.  we're a month in and sometimes i need to remind myself she is a she and not roman.

after spending a few moments with her and a chat with the nicu doctor, they took her to the regular nursery to finish their assessment. my doctor finished patching me up and i was wheeled back into my recovery room. so, all i did for this delivery was lay on a table and post op felt as though i had been through labor as well. i was exhausted. all i wanted was sleep...and to stop involuntarily shivering...mostly so i could relax and sleep. a couple nurses brought clementine back to me within an hour and we nursed. and it was perfect...aside from all the cords hooked up to me. that made it a bit awkward and i needed extra hands, but she nursed perfectly. after our little bonding the nurses took her back to the nursery...i think. i remember they took her away again, and jeff went with them, again, but i don't remember why. i was so groggy and tired.


{photos by haleigh steere}

it took a while, but once i was able to move my legs a little bit i was transferred to our post-partum room. it's odd how the hospital is set up. labor and delivery on the third floor, nciu on the fourth and post delivery on the second. i find it hilarious the way they took me down to our room.  it was this device that acted like a hammock. i was rolled onto it and then lifted up and wheeled to an elevator and to our room, then lowered down.  pretty handy piece of equipment.  we then began our four day hospital stay.

clementine went through a morning of tests the day after her birth. so much so she was exhausted and barely nursed the rest of the day. i am so proud of how well she did. we chatted with the pediatricians about the results of her tests and one of them even wanted to take photos of her to be able to teach his students about TS and also that they are not just a statistic. i was reluctant to consent because selfishly i didn't want my daughter to be a teaching tool-it was too painful, but jeff had no issue with it as long as it was to enlighten others. in the end, it never happened, and i'm grateful for that.
 jeff went home saturday morning to pick up the boys and i convinced my sweet friend haleigh to come stay the night with me. i didn't want to be alone. luckily she's awesome  and we had a slumber party and snuggled my girl in my double bed and watched movies. there ended up being some issues with clementine losing too much weight and i was so emotional about having to supplement her. i began pumping after i nursed her but still ended up needing to give her a bit of formula. thankfully haleigh was there to help me get through that because i was a mess over it. and my supply came in as soon as we arrived home, so the need for supplementing was no longer necessary.

the boys came to visit with jeff's parents saturday as well. i was able to see them briefly and could tell they wanted to be home and they missed jeff and me. i was ready to go home then, but because of clementine's weight we had to stay until sunday, and clementine almost had to stay until monday, but the pediatrician felt we were competent parents and would do what we could to get her weight back up and he okay'd us to go home sunday. all we needed to do was have a follow up appointment to have her weighed.

sunday finally arrived and i was aching to go home and be with my boys. haleigh left mid morning and it was just me and my girl. because of her weight and early delivery, clementine needed to go through what's called the car seat test. all that's involved in that one is she is buckled into her car seat for ninety minutes -i know, long right?- while hooked up to monitors to make sure she doesn't stop breathing. due to the incline of the car seat and her size, it's somewhat common for that to happen (mostly to premature babies, though). once again she passed with flying colors and we waited to be discharged. my dad picked us up and took us home and roman was ready to hold his baby sister immediately. it was a precious sight.

we are in love with this precious gift.
{photo: haleigh steere}

Sunday, February 10, 2013

Clementine Eulalie ::a birth story::

part one.

here we are, the week of valentine's day, and i'm just now getting my crap together long enough to write the story of my daughters birth.  in a way, it feels silly writing about a scheduled c-section, seeing as how it's more 'predictable,' but there were still so many emotions involved and i don't want to forget how far we've come on our journey to meet this precious life.  

two weeks before her birth i went all nesting-on-crack on everyone.  in that span of time i sought out, found and purchased a dresser for her room. sanded, primed, painted and chevroned said dresser with the help of a great friend {whom without i'm positive it wouldn't have turned out as amazing as it did, or even gotten done. thanks beth! xo}, found a crib on craigslist and went to pick it up with another great friend on our way to supper in des moines, put the crib together by myself that night, purchased a mattress the next day as well as  fabric for crib sheets. made yet another great friend sew three crib sheets for me, i made eight burp cloths, went shopping for nursery wall decor, found some cute wooden birds and modge podged scrapbook paper on them, bought more fabric and sewed a couple gauze swaddle blankets...and made a feather stamp from a potato and stamped one of them.  

exhale. 

i think that covers most of it.  there's nothing like a deadline to get you motivated. her room is still not completely done, though. i'm not entirely satisfied with the wall decor so i'll be adding to it here and there. plus her windows are begging for some curtains. good thing she doesn't sleep in there yet. :) 

fast forward to january 23rd.  coming off of four hours of sleep the previous night, you'd think i would have been tired.  i was. i let the boys watch a little too much kipper the dog that morning so i could rest on the couch. don't worry, they didn't mind.  and as soon as i got my butt up i made sure to take special notice of the little things the boys did because this was my last day with just them.  it was an ordinary day. we ran last minute errands, ate lunch, took naps, pitched fits and packed bags. but at the same time it wasn't ordinary. it was the last day of this particular routine. we had been counting down the days to their sleepover at grandma's house and talking about how mommy will be in the hospital for a few days and won't be able to see them {flu policy at the hospital, thank goodness for face time...i missed them like crazy!} and while roman understood for the most part, i was hoping viggo would have a roll with it kind of disposition.  leaving them made me nervous. not because we were just leaving them for an overnight with the grandparents, but because when we reconnected, life would be different. good different, but different nonetheless.  

that evening we loaded all the boys' stuff up in the van and met jeff's parents at el azteca for a celebratory supper.  afterwards we all headed to jeff's parents house and hung out there for a little bit.  i was trying to soak in every last second with my boys.  we switched car seats out and i went through our nightly oiling of the feet with jeff's mom.  roman and viggo had gotten small colds earlier that week so i had brought every essential oil cindy could possibly need...with instructions on use, of course.  we had been praying hard against illness {specifically the flu} in the weeks prior to this moment, so i was on high alert with the defenses.  around the boys bedtime jeff and i hugged and kissed them a little extra, and took on last family photo of just the four of us, and hugged and kissed a little more, then we were off.  when we got home i sat in our empty home marveling at the fact that we were hours away from meeting this new life. a new life that, at several points along the way, we were sure we wouldn't get to meet until heaven. we packed our bags for the hospital and jeff went to bed.  i tried falling asleep, but i was consumed with thought. it took more than an hour for sleep to finally make its appearance. and then i was up before the alarm.  

Friday, December 28, 2012

another week to wait.

just stopping by to let you all in on how our appointment went today. the answer is eventful and full of emotion. at each appointment from here on out i undergo a non stress test and ultrasound. the nst is boring and i'm not sure why they feel the need to perform it each and every week, but nonetheless it happens.

 today's ultrasound showed more swelling than last week. long, emotional story short we had initially scheduled a c-section for thursday, january third.  but due to the other doctors opinion it was canceled because our girl's heart is strong. today i was given shot one (of two) of steroid "mature baby's lungs." I will receive the second dose tomorrow evening.  the reasoning is should she be arriving in the 34th week, or anytime before 37 weeks they wont have to worry about her lungs being underdeveloped. i was told there are no side effects to either of us from this steroid....except the large amount of pain i have in my butt.  because why not use that part of the body for this injection.  

ahem.

so, here we are again. waiting another week (which i'm beyond thankful to have another week to figure out the logistics of everything).  we don't know what we'll see next friday, but jeff and i have a feeling our girl will be with us the first week in january.  the doctors don't know what's causing the swelling or why it's concentrated in the lower half of her body, but they are worried about hydrops which is the reasoning for the steroid injection. you know. just in case. 

i am looking forward to a quiet weekend with my under the weather boys.  i have never craved them like i do now. hoping your weekend is lovely too!

*again, sorry for the lack of photos. still haven't taken the time to figure that out. and my header photo is a little outdated as well...things to do!*

Sunday, December 23, 2012

just popping in

whoa. hey life, can you calm down just a little? between doctor appointments, finishing up christmas shopping {and wrapping!}, and day to day tasks with a two and four year old, my days have merged with the next and time is slipping out of my grasp. and then add pregnancy brain on top of that. it's fun over here. speaking of christmas, tomorrow is christmas eve already! what?! i cannot wait to wake up on christmas morning with my littles and watch them unwrap their gifts, and have a christmas breakfast {still need to figure that out}, beginning holiday traditions with the boys, and spend the day with extended family. this year, thanks to pinterest, i'm starting a christmas eve surprise box tradition.   i've filled a box, wrapped of course, with new jammies for each boy, a board game, a new christmas book, and other odds and ends.  how fun it will be to come home from church tomorrow night and have this big box for them to open. and what's more fun than opening a box filled with goodies to unwrap!?  unwrapping is the best part.  i plan on wrapping all their stocking stuffers as well because it's just that fun.  eeep! so excited!

next order of business...

we have figured out a way to keep viggo from tearing off his diaper during nap and bedtime. packaging tape.  it's become routine in my home at nap and bed time to secure viggo's diaper with clear packaging tape. wrapped all the way around him. viggo actually thinks it's awesome. he loves having it done and cooperates so well, usually smiling and watching us as we do it.  he loves tape, so i can only imagine his excitement to be able to wear the stuff all night long.  and mama does just a little less laundry. win-win.

roman has adjusted to being four quite well.  now that he's four he is just more capable...i guess. so he says.  everything he can do now is because he's four. whether it's getting himself dressed, eating a certain number of bites of food at meals, jumping off the couch. you know. four year old things.  it's pretty fun so far.

and in sister news, whom i now like to call our little snow bunny, a few developments have emerged. first of all, the name we chose for her has been claimed by another family we know {we did not tell our name to said family, so they have no idea}, and now we are looking for another name.  it's difficult to unattach yourself to a name you've been calling your child for the last several months, but this family also has a son named something close to roman, and i just can't have it.  it would just be too weird for me. we're pretty sure we've landed another first name, but now to string it to a middle name.

we also had a doctor appointment this past friday. in the two and a half weeks from our last appointment, sister went from two pounds three ounces to three pounds eight ounces {i'm glad all that extra eating i've been doing has been worth it!} but has also developed some swelling in the lower half of her body. legs, hips, & feet.  we don't know what's causing it but it's something that needs to be watched closely. i will start weekly appointments from here until the end of the pregnancy which, we learned, could be sooner than later.  if friday's appointment shows more swelling, due to the risk of hydrops occurring,  i will be given a round of steroid shots {two total in 24 hours} to mature her lungs enough for survival outside. usually delivery happens a few days after the steroid is given, which means sister could be coming shortly after new years. so... there's that. there is now a heightened sense of 'oh crap we've got to get things FIG-URED OUT!'  of course, there is also the chance that the swelling could stay the same or go down, and in either case would not merit immanent arrival of baby. which would be great. but whatever God wants to do is fine with me. i just hope he helps figure out the logistics of me being in dsm with snow bunny and jeff and the boys being at home, with jeff going to work at four in the morning.  i believe we will need a live-in for a while.  but we can't really plan anything until we know more on friday.  so we wait...some more.  and while we wait we will enjoy celebrating the birth of our savior. thank goodness for hope.

i sure hope your have the merriest christmas!

xo